Sunday, April 21, 2013

Day 781

I needed another happy picture today. (Although if you knew nothing about flowers, a picture of a "bleeding heart" might not sound all that pleasant.)

Saturday, April 20, 2013

Day 780

Figured after all the complaining I've been doing it's about time for happy things.

Like spring flowers.

Friday, April 19, 2013

Day 779

How much can one person take?

Despite my repeated declarations to the contrary, I've had to start back on the pain pills. Can't believe I crossed back over that line. I also have to get a shot today - in my rump - that is supposed to help with pain.

When I lifted those big, heavy boxes for the post office the other day I forgot something. Part of the recovery instructions from the cardiac catherization was to limit my lifting to three pounds. Oops. Now I'm paying for the oversight. The ache from the elbow to the wrist is not pleasant.

The soonest I can get into the doctor to discuss my pulmonary function tests is Wednesday. So more days of keeping still, more days of not being able to breathe.

Today is my chemotherapy drug day. Which means the next few days will have me feeling even worse than usual.

And the cherry on top for the day? I'm writing this from the rheumatologist's office. It's infusion day. Happy flippin' Friday.

Thursday, April 18, 2013

Day 778

Still no word from the doctor, but I did get a nurse to read the results of my pulmonary function test to me. In hindsight that was probably not the best idea. Amid all the medical gobbledygook a key phrase stood out that I did understand. So Ms. Researcher me typed that phrase into the computer and added the words rheumatoid arthritis to the search.

Shouldn't have done that. All kinds of research studies connecting the condition to rheumatoid arthritis popped up. Studies painting a gloomy picture.

I can't let my mind go there. I'll go about my day, my week, my month and wait to hear the doctor's take on it and the next steps involved. And I'm pretty sure there will be at least one or more next steps.

To prove that I am moving on, we went to Alejandra's tonight. It has been so long since we've been there I couldn't even remember what menu item we were on. So I guessed. Two combination platters, one with a tamale and the other with a zope.

Wednesday, April 17, 2013

Day 777

Selling on eBay has been pretty fun. I get to clean out my stuff, send it to someone who could make better use of it, and make a little money while doing it.

Except on days like today when I have several packages going out at once. With me not being able to move/walk/stand but a minute or so before I run out of air it takes a bazillion breaks for me to get just these boxes packed, loaded, and to the post office. Boy, I hope I get some answers soon. Thank goodness my mind is still sharp (so far), because my body sure isn't.

Tuesday, April 16, 2013

Day 776

The soap opera continues.

I got the latest test results from the rheumatologist's office today. My inflammation numbers are down, like to normal. As much pain as I'm in I'm not sure I believe it. Looks like the doctor doesn't believe it either because he wants me to retake them next week. No question about my liver function, though. It's not working right, with the bloodwork showing my liver function off significantly.

Thank goodness for my flowers. Only thing getting me through today.

Monday, April 15, 2013

Day 775

Getting closer to answers. I think.

I had another test over at the hospital today, a pulmonary function test. It's a test all about lung capacity and force and oxygen saturation and so forth. I failed. Big time. They ran several tests and every single one was abnormal.  Every single one. My lungs ranked from 40% to 71% of normal on the different tests. Not good. Even the one where they did a breathing treatment with medication, medication that opens up the airways of asthmatics? Yep, that didn't show the results it should have. (In my mind that test told me I don't have asthma - don't know if the doctor will see it that way or not.) It'll be a couple days before he gets results and then I guess we'll see where we go from here.

And if that wasn't enough fun for the day, the rheumatologist and cardiologist had a consultation about me. They both agreed I need to, despite all the terrible side effects, continue with the infusions. That means I'm up for one again this Friday. I don't know if I have the strength.

Despite all that, I did have something pleasant today. Just look at our gorgeous tree!