Thursday, March 21, 2013

Day 750

Still hanging out in Boise, keeping quiet. And organizing all that fabric from last week. Thanks to my mom and daughter and their help some is ready to head to eBay, some to Marsing, and some will stay put right here.

Wednesday, March 20, 2013

Day 749

Being that the rheumatologist's office is a lot closer to our place in Boise than our place in Marsing I'm hanging out in Boise for a couple days. Just in case. According to the nurse I could have a potentially life-threatening allergic reaction up to 48 hours after the infusion. Better safe than sorry!

It did give me a chance to get late afternoon pictures of the thunderstorm rolling through.
That's black sky behind the tree, not blue sky.

Tuesday, March 19, 2013

Day 748

I never blog at the exact moment something is happening but today is different.

First of all, I thought I'd be able to talk about my first training session - as an editor - on my uphill climb to being a narrator for the books for the blind. But the gal training me had to cancel so here I am writing about the next scheduled appointment of the day.

I sit in this room.

I sit here in this row of chairs.

Hooked up to this machine. Feet up, blanket covering me, blood pressure cuff on one arm, IV in the other.

Other than the nurse sitting at her computer and the folks, mostly staff members, walking by the room and glancing at with me with a look of pity and forced smiles on their faces, I'm alone. Yet it's not quiet. The noise of the machine pumping the multiple vials of medicine that was injected in the IV compete with the conversations of doctors and nurses and patients in the hallway.

I crossed one of those last lines I drew in the sand. I'm running out of options. I've crossed the steroid line, the chemotherapy line, the pre-filled syringe line, the measuring the medicine and then injecting myself line, the anti-malaria drug line.

Today I crossed the infusion line. I sit here with thousands of dollars entering my veins in the hope of gaining some relief in the rheumatoid arthritis battle. It's a battle I've been losing. But maybe, just maybe...

Monday, March 18, 2013

Day 747

It seemed exciting, it seemed a fun way to keep myself busy. Patterns, patterns, patterns. Except when I hit that imaginary wall today, that one caused by the chemotherapy drugs, it didn't seem so fun and exciting. Seemed like nothing but work. Time to refocus my mind, to concentrate on trying to find some energy. And time to organize patterns.

It will get better! (If I tell myself that enough it eventually will.) Just not today.

Sunday, March 17, 2013

Day 746

I started out buying some cheap patterns to get an idea of styles. It's now turned into a little obsession.

Okay, big obsession.