Friday, March 11, 2011

Day 9 of 365

It all started with the cat.

Kitty. Putty. Sissy. Depends on who is calling her.

Every year, my daughter asks for a new calendar for Christmas. She used to want Harry Potter, but for the last few years it has been a cat calendar. Now that she's living on her own in a different town and we have Kitty-Putty-Sissy staying here with us, we decided to create a calendar of her cat. A different picture of the cat every month with some cute caption.

The month of November I spent going through our pictures of the cat and finding ones that would match up for different times of the year. Her in the leaf pile in the fall, in the rose garden in the spring. I decided for December the cat should be under the Christmas tree. I waited until we put up the tree, took a quick picture of the cat under it (no presents under the tree yet), and took my film to a one hour photo.

When I picked up the pictures an hour later, much to my surprise the picture showed the cat under the tree with presents around her. Wait - are those our presents from last year? Yep. We have gone the entire year without needing to get film developed. An entire year of less than 24 pictures worth taking. What the heck happened?

Now, we're a family that traveled a lot when I was working. Been to all 50 states, cruised to Hawaii twice, cruised to Alaska three times. Sun Valley every year. Arizona for Spring Training. Las Vegas or Florida or Texas for Christmas. And during all those vacations, took lots and lots and lots - thousands - of pictures. Some days I would go through an entire roll of film. We have dozens of scrapbooks filled with pictures of the beautiful places we've been.

Except now that we're home, not traveling, we have nothing? Nothing to note, nothing worth capturing?

And that's what got me started thinking about this picture a day thing. A take-a-picture-every-day-to-see-that-you-have-lived kind of thing. I cannot and will not believe that my/our everyday life is not as important or noteworthy as any place we've visited. In our vacationing life, we have taken pictures of race cars, of baseball stadiums, of signs in gas station windows. And we must now have pictures of our real, non-vacation life. Daily pictures that might help me find the good in the day, that might help lead me back into the land of the living instead of the land of the existing. Thus began the documenting of my days.

And how's Kitty-Putty-Sissy doing? Today, she's hiding her eyes from the sun and sleeping away. 

Thursday, March 10, 2011

Day 8 of 365

So today I realized I do have to risk getting TB or lymphoma and start taking these crazy-expensive medications.

Yesterday, I had gone grocery shopping, to the drug store, Staples, physical therapy, and got a haircut. I kind of knew that was too much to cram into one day, but I did it. Today I attempted to do some work in the garden. We decided to plant strawberries this year, and since they've already been shipped, I needed to hustle to get the ground prepped. We're putting them in a terraced bed that we've used before for planting, so there isn't all that much to do to get the ground ready. Had to dig up some chives and a couple of peony roots, then had to take out some extra soil that overflowing into the lower terrace. I didn't quite get to do all that needed to be done. I dug a couple of the chives, tilled the soil a bit with the hoe, but that's about it. Thank goodness my daughter was here today - she had to do the rest. I probably spent a total of 15 minutes work; she spent at least 3 hours. My body just gave out.

Bending over picking up the chives hurt the back, raking hurt the shoulders, sitting down to take a break hurt the knees. Now tonight  I'm so close to popping myself a pain pill, but since it wasn't in my plans, I won't.

It is frustrating. Frustrating that my body has worn out. Frustrating that pain infuses each and every day. Frustrating that my life is not the same life I've known. But my mind is clear. And some days that's all I have.

In frustration, I headed into my sewing room, my haven of quiet, for an hour. I've been putting together some Concentration/Memory games made out of fabric. Today I finished up the ocean/beach themed ones, and made a little cloth carrying bag for it. I may put them on Etsy later, but for now, here's what it looks like:

Wednesday, March 9, 2011

Day 7 of 365

Finally got my car back today so I could make a run to the grocery store, the drug store, Staples, and of course, physical therapy.

The rheumatologist is starting me on some new injectable medication since my Methotrexate isn't doing the trick. I have to give myself shots weekly of this medication. Unfortunately, a couple of the possible side effects aren't pretty. I could get TB or lymphoma. In fact, I had to have a TB test and chest XRAY before being prescribed the medication.

I'm not thrilled about taking this new medication, but I'm getting in the desperate phase. I was diagnosed with Rheumatoid Arthritis a little over a year ago. I knew I had a more general type of inflammatory arthritis several years back and was taking medication for that. However, with this newer diagnosis came more aggressive treatments. I've had blood work monthly, testing my inflammation level (among other things) and my numbers have always been high no matter what medication I've been taking. As the symptoms of rheumatoid arthritis have increased over the last few months - the stiffness, the pain, the swelling of the joints - it's become clear we do need to take a different course of action.

In prepping to take it, the rheumatologist's office gave me information about getting some help with prescription costs because it's a pricey medicine. 

I picked up this new medication at the drug store today. Thank goodness I qualified for the prescription assistance. For one month of this medication it cost $2057.09. One month. Four shots. Can cause TB or lymphoma. Over $2000. I'm in shock. Such shock I don't even know what to say about that right now.

On a happier note, I also made a trip to Staples for some rebate items. I spent $38.12 on two packs of 500 sheet copy paper, one pack of 500 sheet bright colored paper, and two packs of pull and seal 100 count envelopes:


Total cost was $38.12. I can submit easy rebates for all five items. After rebate the copy paper is $1 per pack, the bright colored paper is $3 per pack, and the envelopes are free. $5 (plus tax) for $38.12 worth of supplies. Not bad.

And a better deal than injectable arthritis medicine.

Tuesday, March 8, 2011

Day 6 of 365

I have a TV in my sewing room and sometimes it's on and sometimes it's not. I think I'm watching too much TV right now, though. Entertainment news channels, CNN, and even NBC, CBS, and ABC have been running all this about Charlie Sheen right now. And then all the comics reaction to his rantings and ravings. And then the other comics doing impersonations of his rantings and ravings. When does it stop? Yes, I could turn the channel, but then I wind up seeing it on some other channel. Or, running into one of the Real Housewives shows. Is there anything left to watch?

Marcus Welby at 9 AM everyday - I am there. I just started watching Glee a few weeks ago. But my absolute favorite is The Office. Funniest show I've ever seen. (But I also said that about "Whose Line is it Anyway?" when it was on.) I began watching The Office when I was recovering from knee replacement surgery last year, but thanks to reruns (and now my own personal collection of every season) I'm all caught up. I heard today that they just wrapped filming on Steve Carrell's final episode. I'm interested in seeing where the show goes without him.

Even though I complain about TV, I really don't pay all that much attention to it - it's usually just noise in the background. Today I started working on a quilt to send to "Calling All Angels", a very sad but inspiring story. They need the quilts by the end of March, so I'm going to have to give up the Charlie Sheen story and get myself moving. I accomplished quite a bit today on the girl's quilt. I have the individual blocks together, but now need to put the rows together and go from there.

Monday, March 7, 2011

Day 5 of 365

I think I just got a free pass today.

I've been watching Nascar these last three weeks, and they keep talking about this "free pass" thing. As far as I can tell, it happens during a caution flag, and has something to do with pit road (or not). Ok, so I don't have a clue what it is, but when they talk about it, they make it sound like a good thing.

My free pass today? Well, I have no car until Wednesday so am at home with nowhere to go. Thought about maybe taking a walk (I really have to psych myself up to do that and conditions have to be perfect - no rain, no wind, not too cold). Even thought about walking to the post office to take my flag quilt top and coupons (see days 3 and 4). But I get up this morning and here's what I see. 
Here it is March, and my tulips are coming up, and we've got snow. And it seems to be to be a sign that I don't need to walk to the post office. Instead I stuck a ton of stamps on my envelopes and walked them across the street to mail them in our mailbox in the very slushy, wet, heavy snow. And it's still snowing.

So today will be spent in the house. No one is home, the cat is asleep, no tv, no radio, and it's very quiet outside. Looks like I have a free pass to read, to sew, to do whatever I want.

Monday's a good day for a free pass.

Sunday, March 6, 2011

Day 4 of 365

After having hubby back home after him being away the last couple days, I realize how much less I get done when he's around. And how much less sleep I get (his snoring). I did get some biscuits made for breakfast, clipped the coupons from the Sunday paper, and watched NASCAR with him.

My biggest project of the day was going through my coupon binder and finding all the expired coupons I had. With me living with my daughter for several weeks while I recovered from shoulder surgery I didn't need to grocery shop. Hubby stayed here at home and mostly lived off our stockpile, so boy, did I have a pile of expired coupons.
I usually can't bring myself to toss them (although I admit I sometimes do). Today I divided them into food and non-food piles, bagged them, and have them ready to go out the door tomorrow to the Krazy Coupon Lady's Overseas Coupon Program in Boise. From there they go overseas to military families, where they are allowed to use the expired coupons in the commissary and PX/BX.

Saturday, March 5, 2011

Day 3 of 365

Finally got a good night's sleep last night.

After a couple mornings up at 5 am, it was nice to be able to sleep in a bit. I've started trying to get myself into a routine upon waking up and it seems to be helping my back get moving a little better in the mornings. I go straight from bed to the lift chair.

Yeah, I'm young for a lift chair, but when I had my first rotator cuff repair back in July, it was where I slept. And with my knees and back the way they were/are, having the chair help me out was a good thing. It's not all that comfortable, is very noisy, and appears to be on its last legs. But for me in the mornings right now it works just fine. Being able to sit, then have the chair slowly move my legs up and tip me back - wow. I can feel it working on the back. I get the chair to recline me back as far as it will go (which isn't far), and sit there for a while. It hurts - bad - for about five minutes, but then after that the pain subsides. By about 20 minutes, I'm ready to get up and get some breakfast. Unfortunately, it doesn't help my hands, or shoulders, or knees, but having some relieve on the back is greatly appreciated. Of all the things going on, the back is the hardest to deal with when it hurts so much. So any relief I can get I'll take, even if it's just for a few minutes in the morning.

I did spend quite a bit of time in the sewing room today, working on folding and refolding fabric. I could see where it could be considered physical therapy for a shoulder. Arms up, down, over, across. The shoulders got a workout.

But there's something about fabric for me. I love the colors and patterns. I can't get enough. And I love to make things with fabric. But I think I spend more time organizing and reorganizing it more than anything. And I spend so much time starting projects before my last ones are finished.

However, I have one project getting ready to go out the door. I made a flag quilt top and haven't done anything with it. Haven't quilted it, haven't even picked out a backing. But when I was visiting quiltingboard.com, I came across a lady whose daughter will be returning from Afghanistan in September with eight others. The mom was wanting patriotic quilt blocks so that she could present a quilt to each returning soldier. So instead of a quilt block, I'm sending my entire quilt top. It's heading into the mail on Monday, and I feel good about being of service to others.

Friday, March 4, 2011

Day 2 of 365

Back again for Day 2 of my year-long picture-a-day project. Woo hooo! (Said with enthusiasm like Vicki from Real Housewives of Orange County.)

I do watch those Housewives shows on Bravo. And being on leave of absence from my 17 year long career, I now (temporarily?) consider myself a housewife, staying home taking care of things. But watching those shows makes me wonder what a housewife really is nowadays. Off the top of my head I can't think of any of the women on those shows who stay home and take care of the kids. They have a clothing or jewelry line, or are working on a book, or trying out a singing career. And not many of them are "wives". They're single or divorced, and some have had no kids or spouse ever. But, boy, do they bring the drama. How does that make you a housewife? I thought a benefit of being a housewife was the lack of drama - unless you count leaky faucets (which I dealt with this week) or sick kids.

As part of my housewife-ly activities today, I made M & M cookies. I was at Walgreens earlier this week and picked up a bag of M & Ms on sale with the intent of making them for hubby to take, but he opted for us to keep them at home. I don't know that in all our years together (that's 27ish years) I've ever made M & M cookies. Guess that housewife in me just couldn't resist this week! They're mighty yummy. I found the recipe here.


And my multiple pincushions from yesterday? I decided to put them on my new Etsy page.

Thursday, March 3, 2011

Day 1 of 365

So the last 18 months have been rough.

First there was a back injury that make it difficult to do most daily activities. Then came the Rheumatoid Arthritis diagnosis. Total knee replacement surgery was next. Then, a root canal gone bad requiring gum surgery. Took a year's leave of absence from work to help expedite my healing. Broken finger. Torn rotator cuff in my right shoulder and subsequent surgery. Followed by torn rotator cuff in my left shoulder and subsequent surgery. I've spent 17 of the last 18 months (including this month) in physical therapy and have taken more pain medicine than a person should. Back issues still plague me, my knee doesn't bend completely, I still can't raise both arms above my head, and the chemotherapy medication I'm taking for the rheumatoid arthritis isn't improving my condition.

And I'm 45 years old.

Despite the fact that I have more bad days than good and my body is failing me, I am thankful.

I'm thankful for my family. For my husband who is now the breadwinner for the family. For my daughter who let me come live with her for my last surgical recovery. For the cat that climbs up on me when I'm not feeling so great. For the roof over my head. For the view of the river I have from my living room window. For being able to, on some days, do something that will benefit others. Collecting coupons to send to military families. Blankets for babies in the hospital. Cookies for my physical therapists.

But over these last 18 months I haven't felt so thankful. Out of work, in pain, struggling to get through each day.

But today that is going to change.

For the next year, I have a goal. A picture goal. A take-a-picture-every-day-to-see-that-you-have-lived kind of goal.

Every day, I will take a picture of something I did, created, saw that was interesting (or even boring), somewhere I went, or anything else I decide to capture at the time.

I don't know where this will lead me, but hope it will lead me back into the land of the living instead of the land of the existing.

My first picture? Some pincushions I've been working on these last couple days. I made eight, (what can I possibly do with eight?) but these four are my favorite.